Our Mission
Nebraska RARE is dedicated to empowering families impacted by rare disease through advocacy, community connections, and education. We strive to increase awareness, partner with healthcare organizations and providers, and communities to ensure every person with a rare diagnosis is understood, supported, and valued.
Our Leadership Team
Paige Rivard
President
Leading Nebraska RARE's vision to empower families across the state.
Susan Samuelson
Vice President
Supporting advocacy efforts and community engagement initiatives.
Kelsey Lahaie
Secretary
Ensuring organizational excellence and coordinating outreach efforts.