Our Mission
Nebraska RARE is dedicated to empowering families impacted by rare diseases through education, advocacy, and community inclusion. We strive to elevate awareness, partner with healthcare providers and communities to ensure every person with a rare condition is understood, supported, and valued. Together, we build a compassionate network where all families feel seen, heard, and never alone.
Our Leadership Team
Paige Rivard
President
Leading Nebraska RARE's vision to empower families across the state.
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Susan Samuelson
Vice President
Supporting advocacy efforts and community engagement initiatives.
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Kelsey Lahaie
Secretary
Ensuring organizational excellence and coordinating outreach efforts.