Paige brings a unique blend of executive leadership, strategic vision, and rare disease experience to drive innovation at the intersection of healthcare, advocacy, and community engagement. With over two decades of experience in both corporate and nonprofit sectors, she is positioned to lead the mission of Nebraska RARE — especially in accelerating rare disease innovation that benefits patients, families, and the broader Nebraska community.
Her lived experience as a rare disease caregiver to her son, Jake, living with two rare genetic disorders, grounds her work in empathy, purpose, and action. She understands firsthand the gaps in the current care and innovation pipeline and works to close them through advocacy, storytelling, and systems-level change.
In addition to her leadership in rare disease communities, including CEO of the National Prader-Willi Syndrome Association, Paige brings a strong business foundation in enterprise relationship management from prior roles with JP Morgan Chase and TSYS Merchant Solutions/First National Bank. She currently consults with pharmaceutical companies in the rare disease space and serves as Head of Social Impact for BlueOakNx. Her business acumen, grounded in an MBA in Healthcare from Creighton University, equips her to navigate complex funding models, regulatory environments, and industry partnerships.
Paige also serves as a board member for several organizations, including the Munroe-Meyer Institute, the American Red Cross, and Raregivers.™ She actively supports efforts to integrate innovation into clinical care, family support services, and community-based programming.
With her deep ties to the Omaha community, strategic insight, and proven leadership in rare disease innovation, Paige is passionate about research, policy, business, and patient voice in the rare disease space — especially for underserved rare disease populations — and is excited to serve Nebraska families.