Nebraska RARE is dedicated to empowering families impacted by rare diseases through education, advocacy, and community inclusion. We strive to elevate awareness, partner with healthcare providers, and communities to ensure every person with a rare condition is understood, supported, and valued. Together, we build a compassionate network where all families feel seen, heard, and never alone.
We amplify the voices of rare disease families in Nebraska's legislature and healthcare system, working to improve policies, access to care, and support systems across our state.
We provide resources, training, and information to families, healthcare providers, educators, and communities to increase understanding of rare diseases and their impact.
We foster connections among families, build supportive networks, and ensure that every person with a rare condition is welcomed and valued in their community.