Support, information, and connections for Nebraska families
Comprehensive neurogenetics and rare disease clinic providing specialized care for children with genetic conditions.
Visit Website →University of Nebraska Medical Center offers genetic testing, counseling, and specialized care for rare diseases.
Visit Website →Leading pediatric hospital in Nebraska with specialty care for complex medical conditions.
Visit Website →Advocacy organization supporting people with intellectual and developmental disabilities and their families.
Visit Website →Research and clinical services for developmental disabilities, including autism and genetic conditions.
Visit Website →Parent Training and Information center providing support and resources for families of children with disabilities.
Visit Website →Developmental Disabilities Council advocating for policy and systems change in Nebraska.
Visit Website →Leading advocacy organization providing resources, support, and information for the rare disease community.
Visit Website →NIH information center providing reliable information about genetic and rare diseases.
Visit Website →National advocacy organization working to improve healthcare policy for rare disease patients.
Visit Website →Provides travel assistance for families traveling to medical appointments in Nebraska.
Contact Us for InfoPatient assistance for copays and out-of-pocket medication costs for chronic and rare diseases.
Visit Website →Housing for families with children receiving medical treatment away from home.
Visit Website →We're here to help connect you with the support and information you need.
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