Kelsey Lahaie serves as Secretary for Nebraska RARE, where she is committed to strengthening advocacy, awareness, and support for families impacted by rare diseases across the state.

Her passion for rare disease advocacy is deeply personal. Kelsey's daughter, Molly, lives with Rett Syndrome, a rare neurological disorder. Through Molly's journey, Kelsey has experienced firsthand the challenges families face when navigating complex medical systems, therapies, and resources. This experience fuels her dedication to ensuring that families affected by rare conditions feel supported, informed, and never alone.

Professionally, Kelsey brings over 15 years of experience in regulatory and compliance roles, along with a Master of Science in Psychology. Her background includes extensive work in licensing, regulatory oversight, and compliance management. She leverages this expertise to support the mission of Nebraska RARE by helping build strong organizational foundations and advocating for policies and systems that better serve the rare disease community.

Kelsey believes that every family impacted by a rare condition deserves understanding, resources, and a compassionate network of support.